Women with Autism Denied a Diagnosis for Decades

Labyrinthine Covid Reminder System Is The Real Reason For The Delays

The inaccurate cliché is that autism is a case of ‘extreme male brain’ – and for years women and girls have been excluded from some studies, meaning those with it have not been diagnosed or misunderstood. But over the past 20 years, the proportion of women and girls diagnosed with autism has increased – and some estimates now suggest they represent around one in three people who meet diagnostic criteria.

Despite this improvement in understanding, popular perception of autism remains skewed in favor of “masculine” traits, meaning that girls who can mask their symptoms are still ignored or subjected to unnecessary treatment as they grow older. .

Last week TV presenter Melanie Sykes and model Christine McGuinness both revealed they were diagnosed with autism as adults.

In this episode, Nosheen Iqbal talk to Carly Jones, who struggled in school and in her personal life never knowing that autism could be the cause. Learning that two of her daughters were suffering from the disease ultimately led to her own diagnosis at the age of 32. She explains what the stories of Sykes and McGuinness will mean for autism awareness among women and girls. And she reflects on some of the issues she’s faced as a result of this misunderstanding, and how things have changed for her since finding out the truth – both in her day-to-day life and how things have changed for her since finding out the truth. in the work she does as an advocate for people with autism. women and girls, which earned him an MBE.

We also hear from the Guardian’s science correspondent Hannah Devlin, which explains how scientific understanding of autism has grown in recent years and the impact that social pressure to ‘fit in’ can still have on the women and girls who have so often been forgotten.

You can read Hannah Devlin’s article “We Were Not Visible”: Growing Awareness Leads More Women to Autism Diagnosis, here.

Carly Jones’ book, Safeguarding Autistic Girls: Strategies for Professionals, is out in December and is available for preorder at the Guardian Bookstore.

• In the UK and Ireland, Samaritans can be contacted on 116 123 or by email at [email protected] Where [email protected] In the United States, the National Suicide Prevention Lifeline is 1-800-273-8255. In Australia, the Lifeline crisis helpline is 13 11 14. Other international helplines are available at www.befrienders.org

Photographie : Ken McKay/ITV/Shutterstock


Please enter your comment!
Please enter your name here