This is a type of brain disease that affected the Oscar-winning actor’s thinking, memory, and movement control.
He would end up committing suicide in August 2014, at the age of 63.
Susan said that when Robin died she lost “the greatest love I have ever known”.
Speaking about her husband, she said: “He was a man who was incredibly rich and deep and knew so much about humanity and the culture, and his humor was like that secret weapon.
“There were so many times he saw that someone needed a lift, then he just injected a little humor in the right way to make a difference. ”
Lewy body dementia is the second most common type of progressive dementia after Alzheimer’s disease, but the actor had been misdiagnosed by doctors and it was years after his death that those close to Robin found out what he had really experienced.
Susan continued, “Robin and I knew there was so much more going on. Robin was right when he said to me, ‘I just want to restart my brain.’
“At that point, I promised him we were going to get to the bottom of it. I just didn’t know it would be after he passed away.
Susan said that before her death, doctors told the couple to sleep separately as Robin struggled with insomnia.
She continued, “He said to me, ‘Does that mean that we are apart?’
“It was a really shocking moment. When your best friend, your partner, your love – you realize there’s a giant sinkhole out there somewhere, and you can’t see where it is but it’s just not based on reality.
“It was a difficult time. ”
Speaking of the title of the documentary, Susan said it was Robin’s “wish” to “help us all be less afraid”.
She told Entertainment Weekly in a statement earlier this month, “We had discussed what we wanted our legacy to be in life; when it was time to go, how we wanted people to feel.
“Without missing anything, Robin said, ‘I want to help people be less afraid. “”
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