“In the last year of her life Robin has been faced with anxiety, paranoia, sleeplessness, frightening realities and a roller coaster of hope and despair,” his widow said. Susan Schneider Williams at Rolling Stone in a statement. “With the care of our medical team, we have continued a relentless parade of symptoms but with very little gain.
“It was only after Robin died, during the autopsy, that the source of his terror was revealed: he had diffuse Lewy body disease. It was one of the worst cases medical professionals have seen.
Susan was able to cope with the loss of Robin and make sense of the blackout before she died after studying the disease further as part of the film.
“Armed with the name of a brain disease that I had never heard of, I made it my mission to understand it, and it led me down my unselected path of advocacy,” she adds. “With the invaluable help of leading medical experts, I saw that what Robin and I had experienced finally made sense – our experience matched science. And what I discovered along the way was taller than me and taller than Robin. The full story was revealed during the making of this movie and it contains the truth that Robin and I were looking for.
Robin’s Wish, directed by Tylor Norwood, also features interviews with the icon’s collaborators and will be released digitally on September 1.