- Colorado girl Charlotte Figi, who suffered from epilepsy and helped ignite a global law-changing medical cannabis movement, died at 13 from suspected complications from coronavirus, announcement Tuesday .
- Charlotte and her parents worked with the owners of a medical marijuana dispensary to create a strain with a large amount of CBD.
- CBD is a non-psychoactive compound found in cannabis.
- The strain, dubbed Charlotte’s Web, has successfully treated Charlotte’s debilitating seizures, and her story has become a turning point in the medical cannabis movement.
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Charlotte Figi, the 13-year-old girl with epilepsy who helped ignite a movement of medical cannabis, died of complications believed to be related to the coronavirus, according to an announcement posted on Facebook on Tuesday. She would be the youngest Colorado resident to die from COVID-19 if officials confirmed the cause, The Colorado Sun reported.
On her Facebook page, Charlotte’s mother Paige wrote that despite a previous negative coronavirus test, her daughter was “treated as a probable COVID-19 case”.
Charlotte, her parents, and the Stanley brothers, who own a medical marijuana dispensary in Colorado Springs, worked together to create a cannabis strain containing a high concentration of CBD, a non-psychoactive compound found in cannabis and a low concentration of component psychoactive. THC.
Charlotte has successfully used this strain, dubbed Charlotte’s Web, to treat her seizures, and soon others with chronic illnesses have heard of her story and have sought CBD treatments themselves.
“She was a light that lit up the world. She was a little girl who carried us all on her little shoulders, “wrote the Stanley brothers in a tribute to Charlotte’s website. “She grew up, cultivated by a community, protected by love, demanding that the world witness her suffering so that they find a solution. She got up every day, waking up the others with her courage and with that smile that was infecting your mind on the cellular level. “
A family friend announced Charlotte’s death Tuesday on her mother’s Facebook page.
“Charlotte no longer suffers. She is crisis free forever. Thank you very much for all your love. Please respect their privacy right now, “wrote family friend Nichole.
In the past week, Charlotte’s mother said her entire family was feeling bad but was unable to get coronavirus tests.
Charlotte’s story highlights the therapeutic uses of cannabis
Charlotte suffered from Dravet syndrome, a type of epilepsy, and since she was only 3 months old, she has suffered hundreds of attacks every day, according to The Colorado Sun.
By the time Charlotte was 5 years old, she could not walk or speak and needed a feeding tube. When traditional epilepsy treatments and medications did not help Charlotte, her parents looked for alternative options and discovered the therapeutic properties of CBD. Shortly after, the Figis met the Stanley brothers, the newspaper said.
—Charlotte’s Web (@charlottesweb) April 8, 2020
The Stanley brothers named the Charlotte’s Web strain after Charlotte, and it has successfully reduced Charlotte’s seizures. Finally, Charlotte was able to walk and speak again. Her mother weaned her off pharmaceutical treatment and she no longer needed a feeding tube.
Charlotte’s story became the subject of medical literature and sparked a movement of medical cannabis by patients seeking CBD to treat their chronic illnesses. Her story was also the subject of “Weed”, a documentary by CNN’s chief medical correspondent, Dr. Sanjay Gupta.
In June 2018, Epidiolex became the first CBD-containing drug to receive Food and Drug Administration approval to treat seizures, and the compound is the primary active ingredient in the drug. Forty-seven states allow the legal sale of CBD products, and Charlotte’s Web remains one of the most widely used CBD products, according to the Charlotte website.
Now the medical cannabis community and followers of Charlotte’s story mourn her loss while remembering how she changed the cannabis industry forever.
Realm of Caring Foundation, an organization co-founded by Charlotte’s mother, shared a Facebook tribute to Charlotte on April 8.
“Some trips are long and bland and others are short and poignant and intended to revolutionize the world. This was the path chosen by this little girl suffering from a catastrophic epileptic form called Dravet syndrome, “the newspaper said. “Thank you, Charlotte, for devoting your life to the service of a greater good. We promise to continue the mission. “